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Monday, February 27, 2012

Patching our lives together. . . The new normal. . .

It's been a few weeks since I've blogged, and I apologize for keeping people hanging. Since Mei Li's spinal surgery on January 30th, she is doing absolutely beautifully! We couldn't have hoped for a better outcome. And, Mei Li, as is always Mei Li's style, took the surgery and recovery period on her back in great stride and with an amazingly positive and cooperative attitude. As a result of her cooperation and lying still for those 10 days, her back healed beautifully. And, a couple of weeks ago, we visited Dr. Blount with our follow-up. He was thrilled with her progress and gave Mei Li the "all clear" for normal activity. Now, I'm a bit overly-protective. And, honestly the very thought of Dr. Blount having to remove a piece of her spine during that surgery is all I need to closely monitor every activity Mei Li does. . . at least for a little while. I cringe at the thought of her hurting her spine. So, her "normal activities" have been closely guarded at least for a little longer. Ha!! Until mom is feeling more confident that Mei Li is not fragile.


In the meantime, we have been getting outside a little every day. The recovery period was hard on everyone. . . cooped-up inside the house. The walls begin to close-in around you after a few days. So, as soon as we got the "all clear" from Dr. Blount, we get outside and take walks, we've visited the zoo. . . just about anything to get out and see the sunshine. That feels mighty good!

And, it feels great to know that there are no more surgeries on the near horizon (and hopefully none down the road)!!! We've spent the last 5 months in the medical/surgery phase, and settling in with our new daughter as a family of 4. Now, we are moving into a therapy phase to get her legs and ankles strengthened to improve her gait.

Now that we are leaving the surgeries behind, we are evolving into a little more "normal" phase of our new family. How much fun will it be to take Mei Li swimming this summer and maybe even to the beach for her first time ever? It will be incredible to step into a new time of living and embracing our lives together. . . experiencing new things.

Another exciting piece that is being added into our lives is my writing. I am currently writing a book of our adoption and journey of faith to Mei Li and the miracles that came about as a result. I hope to have it completed in the next few months. And, then, to find an agent. . . I will keep you posted on the book developments.

The one thing I've missed the most during the last 5 months is singing. I've done very little of that, and although every moment with my girls has been precious and well-spent, I am so very happy to have some opportunities to sing again! It feels like "coming home" after being away for a long time. So, I have some gigs coming up in the months of April and May, and I couldn't be more thrilled to get back in the saddle! I'll keep you posted on my music as well!

The past month, Anna Grace has been working hard memorizing her Alice in Wonderland script. She has 2/3 of the script learned and is doing an amazing job! I can't wait to see her blossom in the role of Alice once she begins rehearsing later in March. If you live in the Birmingham area, I hope you will make a point to come out to see her at Birmingham Children's Theatre in April! And that's not all Anna Grace has been "up to"! She has also joined with her cousin Ramsey (age 7) and friend, Cheslee (age 8), and they have created a singing trio called the Chicklets! They have performed a couple of times already and won 1st place in Talladega's Relay for Life Fundraiser talent show this past weekend. So proud of her!

So, life is settling in and we are moving forward as a family with two wonderful daughters! And, Mei Li can move forward and embrace the rest of her life with a corrected foot and an untethered spine!! She is not facing paralysis or incontinence! Just a happy healthy future with her family who loves her.

So thankful for this next stage of our family's journey! Embracing every moment. . .




Wednesday, February 8, 2012

Just One Miracle. . . Of Many Miracles

Our journey to Mei Li has brought along with it so many instances of seeing God's hand work in miraculous ways. These instances began over four years ago and have come in a steady stream ever since. It always takes my breath away when God shows up and does something at the perfect time and in the perfect way. And, because these miracles have been so numerous and so incredible, I've actually begun writing a book of our journey to China and God's call on our family. I hope to finish writing it this year!

But, I thought I'd share "one" of these miracles with you. It just happened a few weeks ago, and it's pretty incredible.

Most people don't have a concept of what the financial cost of an adoption is unless they are going through the process or have a friend going through the process. At least, I know I didn't have any concept before we began our own journey. But, the cost of the adoption process, including travel to your child's country, is substantial. And, unfortunately, it is a barrier for many "would-be" parents and keeps them from being able to adopt at all. That truly breaks my heart because there are SO many children who desperately need families. And, cost of the process should "not" be a deal-breaker for these children or for the men and women who wish to become parents to these children.

We have successfully made it through "the process", and we are so thankful to be home with our precious little girl. . . she is such a gift to our family! But, we will be chipping away at the debt for many years to come. It's just the fact of the matter. But, since we have come home, we have had many medical visits, and two major surgeries. And, thankfully, Geoff has insurance through his job, so the bulk of the medical fees are covered. But, even so, those co-pays and deductibles have been adding up fast! A few weeks ago, I stopped by Children's Hospital to find out what we owed, what was still outstanding and what was pending insurance approval. . . and the figures added up to $1000 give or take. And, I know when compared to what it would have cost without insurance, $1000 is not so bad. . . but, when you add that on top of what already exists. . . we just breathed deeply and said, "Okay, Lord. . . we're going to just add it to the mountain and pay as we can. Just keep chipping away at it. A little bit at a time." I mean, that "is" how you eat an elephant, isn't it? One bite at a time?? But, there is this uneasy pit that sits in the stomach when you know that the mountain is growing and not shrinking. I remember the verse in Matthew that tells us "to be anxious in nothing. . . but in everything, through prayer and supplication, let your requests be known to God. And the peace of God, which surpasses all understanding, will guard your hearts and minds in Christ, Jesus." I keep reminding myself. . . "Be anxious in nothing. . . "
Within a couple of days of finding out the news that we owed $1000 in medical bills. . . and that was before the spinal cord surgery just last week....Geoff and I were at church that next Sunday morning. Geoff ran into a good friend of ours who also has just recently completed their adoption. And, this friend told Geoff that he and his wife had been so blessed to have their entire adoption paid off. The funds came through for them and that they even found themselves having "more" than they needed. So, they were feeling led to use that "excess" to help some other families who were going through the adoption process. One of the families they felt led to help was our family. Mind you, they knew nothing of our bill "update" from Children's last week, and they had no idea of the amount we owed. We had told no one. So. . . he told Geoff, "My wife and I would like to give your family $1000 to help you in whatever way you see most fit to cover costs of your adoption process.". . . .

I know the world is full of critics who would chalk that up to coincidence. But, not me. . . I know where it came from. It was exactly the amount we needed at that very moment to cover the medical bills Mei Li's visits had incurred since coming home.. . up to that very moment, not to mention it was within a couple of days of our learning the balance of our outstanding debt. God's timing is perfect! And, He always shows up "in the nick of time" and cares for His children. To us, this is an inarguable and reaffirming fact.

Yet another beautiful example of God's faithfulness. . . delivered through a wonderful couple who listened to God's voice and became His instruments to bless someone else.

Thank you, Lord, for your providence and blessing. Thank you, for the beautiful people you have placed in our lives whom you have used as your instruments to answer the prayers and meet the needs of others. Thank you for speaking to your children who may hear your voice, if we will only listen. And, thank you for equipping us to do everything you call us to do because if we have your vision, you make provision. Thank you, Heavenly Father, for your faithfulness.

I am thrilled to share this story with you and I hope it offers you encouragement. As always, thank you for following along! Have a wonderful rest of your week.

Saturday, February 4, 2012

Home with our Mei Li

Mei Li. . . 5 days after surgery on her spinal cord

We have been home from the hospital for 2 days, and we are 5 days out from Mei Li's surgery on her spinal cord. We went into this week having no idea what to expect. All of the "what ifs" with the risks of surgery. . . and even if all went well with the surgery, what to expect "pain-wise" in the days following. I can tell you that in true "Mei Li style", she has handled the last 5 days with smiles, little to no complaint, silliness, sauciness, and a sense of humor. I have to ask her if she is hurting, and then I give her Ibuprofen and Tylenol. She had an allergic reaction to the plastic and adhesive placed on her back during the surgery, and we have had to treat the rash on her back. But, it is truly amazing the grace and positive spirit this little girl has maintained throughout the entire experience. She is an inspiration to us all. . . and she continues to challenge me every day to look at the world and my own circumstances with a more thankful and joyful heart. Amazing what we can learn from a little child!

I can't say enough about the phenomenal surgical team that took care of Mei Li. Dr. Blount is nothing short of amazing! Such a wonderful man in addition to a brilliant surgeon. And, his nurse, the anesthesiologist and nurse anesthetist. . . the Lord prepared the perfect team to love and care for our little girl! And, His presence was so obvious in that hospital through each and every person sent our way. Even beyond the nurses and doctors. . . the friends and even complete strangers who made their way to our room to touch the lives of our family and both of our girls. . . they shone such a light! It was a humbling and overwhelming experience. We were completely in a position of having "no" control. . . being dependent on the excellence and precision of the surgeon and nurses, being dependent on the love and support of friends and family, and wholly dependent on the mercy and grace of our Heavenly Father. And, to experience the floodgates open and pour out blessing on us in every one of these areas. . . it is indescribable!
Right now, our days are spent at the house keeping Mei Li confined to the couch or the bed on her back or side. She does have permission to walk to the restroom, but then straight back to lying down. We have 5 more days of lying flat. Then, we will see what Dr. Blount tells us. Mei Li is such an active and spirited little girl; but, amazingly, she is doing exactly what Dr. Blount has asked of her. It seems she understands that we are trying to help her. And, she is responding with a willingness that surprises us all. And, she is doing it with such an incredibly positive attitude.
We are truly blessed, and we are incredibly thankful!!! Thank you to every person who has followed along and offered up prayers and good wishes for our little girl!! You have made such a difference to our family and to the life of one little girl. . . named Mei Li. :)



Wednesday, February 1, 2012

Prayers are answered

Mei Li's spinal surgery was Monday. I asked all of you to pray for her, and those prayers have been answered in a mighty way. She had a laminectomy where the surgeon removed a small portion of her vertebrae in order to get to the lipoma that was attached to her spinal cord. It was a long surgery. They took her back to begin prepping her around 7:15 a.m. Then, the actual surgery began at 8:40. They updated us every 90 minutes, and that was welcome relief. Dr. Blount finally came out to speak with us at 2:00 in the afternoon. His assistant was still sewing Mei Li up, but he had finished the major internal work. Once they removed the portion of bone, he was able to begin removing and detaching the fatty tumor. That was a long and tedious process. He worked under a microscope and removed it millimeter by millimeter. He removed a good portion of the tumor, but the closer he got to healthy tissue, the risks rose substantially. So, he left some of it. Although, he detached all of it. And, the fatty tumor poses no risk in and of itself. It is the fibers that bind the tumor that are dangerous b/c they can tether to the spinal cord (which hers did). And, the tumor can actually "help" keep spinal fluid from leaking. Dr. Blount told us that there was already a good amount of scarring of the spinal cord from the tether, so it is great that we went ahead and opted to do this surgery. She would have experienced neurological problems down the road causing paralysis and bowel issues.


Since then, we have been watching to see that no spinal fluid has leaked. None has!!! We have watched to see if she can move her arms and legs and flex the good foot. She is moving everything!! Of course, the foot that had the surgery on it does not have feeling or movement, but none was expected in that foot. We have also been watching to see if she could go potty, and she has wet diapers consistently. So, no problems with being able to go tinkle. All of these are HUGE answers to prayer. No apparent neurological problems resulting from the surgery.

Mei Li did experience some intense headaches yesterday and some nausea along with them. It is the result of new spinal fluid being created and released in her brain from what was lost during surgery. That spinal fluid being released causes pressure differences in the brain and intense headaches. He told me that the morphine is important to use for these headaches for the first 48 hours. Ibuprofen and Tylenol is not strong enough to handle that pain. Once we went back on morphine at regular intervals, the intense headaches with nausea went away. And, the good news, it is 9:36 in the morning as I type this, and Mei Li has not needed morphine or complained of a headache since 1:00 a.m.!!!

We are thrilled with Mei Li's daily progress. Your prayers have been heard and answered, and I thank you all and the good Lord above for taking care of our precious girl!

We had a humorous moment this morning when Mei Li smelled Mama's coffee. This little girlie loves her coffee. I caught it on video. . . enjoy!!!! It is proof positive that our Mei Li is getting better by the minute! :)

Thank you SO much for your prayers and your good wishes. . . and for following along. We hope to go home, possibly, tomorrow. I'll keep you posted!

Saturday, January 28, 2012

A Mommy's Prayer. . .

Dear Heavenly Father,

I pray for Dr. Blount and his entire surgical team and their families this weekend. I pray that each one of them is healthy, well-rested and is filled with your peace and joy. I pray that your presence will be in that operating room, Monday morning, and that your angels will be in attendance to watch over our Mei Li and hold her hand during surgery since Mommy will not be able to. You know, Dear Lord, how much it means to Mei Li to hold her Mommy's hand every night while she falls asleep. I pray that you will give Dr. Blount a supernatural wisdom and precision and that your Holy Spirit will guide his hands during the procedure. I pray that Mei Li will have a peace in her heart and that You will calm her fears.

I pray that this procedure will be successful! I pray that the tumor will be successfully detached. I pray that you will keep spinal fluid from leaking. I pray that Mei Li will be healthy and have NO infection. I pray for "no" paralysis. And, I pray that Mei Li will remain continent. And, while I'm asking You for so much, I'm going to go ahead and ask You to please allow movement and feeling to return to Mei Li's lifeless little foot. I know that we have been told that that "will not" happen. And, we are at peace if You choose to leave it as it is. But, I also know that nothing is impossible for You. So, while we are "praying BIG prayers", I'm going to go ahead and claim that too!

I love you, Lord! You have blessed our family in so many beautiful ways. And You have blessed us mightily with our sweet Anna Grace and our newest angel, Mei Li. Please hold her in the palm of Your hand on Monday. And, I pray that You will use the miracle of her precious life and radiant spirit in mighty ways.

I pray for your peace and calm to rest on Geoff, Anna Grace, me and the whole family as we wait. We place Mei Li in your hands, and we will confidently "believe", and hold on to the faith and hope we have in You and the incredible people You have given us to care for our little girl.

Father, we remain "available" for You. Come, Holy Spirit. . .

Amen

Friday, January 27, 2012

T Minus 2 and counting. . .

Mei Li's amazement watching the circus!!

We just got the call this morning that Mei Li's spinal surgery is a "first-start" on Monday morning. We are to check in to the hospital at 5:30 a.m. and surgery is scheduled for 7:15. She is expected to be in the hospital for 3-4 days; and, if all goes as planned, home on her back for 10 days.

The 4 areas of concern regarding the surgery are 1. leaking of spinal fluid 2. incontinence
3. infection 4. potential paralysis
Please keep our sweet girl in your prayers. And, we ask that you pray, specifically, for these things. . . And, of course, that Dr. Blount will be able to accomplish his goal of detaching the tumor from her spinal chord.

BUT, "today" we had fun!! We went to the circus! It was Mei Li's first circus experience, and we had ringside seats!! Thanks to our sweet friends Tammy and Lamana for inviting us to join them! It was an amazing show, and Mei Li was wide-eyed, open-mouthed . . . with occasional squeals throughout! However, she is very sensitive to loud noises, and the noise level was incredible. So, about an hour into the show, I had to take Mei Li out due to her not feeling well. Anna Grace stayed with our friends and enjoyed the whole show, while I took Mei Li next door to Birmingham Children's Theatre and visited with all of our good friends there. A Coke (which Mei Li calls Kuhla) and some crackers and lots of attention from our friends at BCT, and Mei Li was feeling fine in no time!!

We're gearing up for Monday, and Geoff's Mom ,"Yaya", is flying in on Sunday to help out for the next two weeks. I am so very thankful that she is coming to lend a hand! And, the girls are ecstatic that they are going to get some much-needed Yaya time!

I'll keep everyone posted on Mei Li's progress on Monday. And, as always, thanks for your prayers and for continuing to follow our journey.

Wednesday, January 25, 2012

Sweet Story. . . From a Sweet Heart

I just have to share a Mei Li story that happened a little over a week ago, and it warmed my heart. I had to go to the ENT to find out why I was experiencing hoarseness. It was noticeable to me when I spoke, but especially when I tried to sing. It had been going on for a while, and wasn't getting better. So, I loaded up Anna Grace and Mei Li and took them with me to the ENT. He scoped me and took pictures of my vocal chords while he had me sing certain pitches. Long story short, it turns out that I have acid reflux, and some irritation of the vocal chords from using my speaking voice too harshly. I'm guilty of calling to the girls from upstairs and downstairs, refereeing their minor arguments and laying down "the law" with my "Mommy voice" too much. So, he prescribed, Prilosec (for the reflux), Prednisone (to bring down the irritation, as I was to sing in a benefit concert the following week), and vocal rest.

We got home from the doc, and Mei Li came to me, very concerned. She asked, "Mommy, ni binglung?" (Mommy, you sick?) I told her that Mommy's voice is hurt, and I can't sing for a little while. I have some medicine to take, and I have to rest my voice.
Mei Li's eyes widened and a dark cloud came over her little face. Tears began to well up in her sweet brown eyes, and she began to cry. She said, her voice breaking, "Mommy, wo yaw Mommy better. Wo yaw mommy sing".
You see, Mei Li absolutely loves music. She loves it more than most children. She can't get enough of it. But, at the top of her list is her Mommy's music. I sent her one of my CDs in a care package when she was in the orphanage in China. I had no idea if they were going to play my music for her, but my hope was that they would. And, I hoped that she could begin to know her mother's voice through my music---especially, song #6 "Songbird". I recorded that song in Mei Li's honor. It is her song, sung to her by her mother who was waiting for her. Since she has come home, all she wants to do is listen to Mommy's music. She has a very opinionated musical palate. She will quickly tell you that she doesn't want to hear quite a number of musicians! Lol! But, she will ask to hear "Mei Li's song" all the time. Over and over she will ask me to play it, and she will comment on the lyrics in the song. "Mommy, Mei Li boo yaw cry", after I sing the line "For you, there'll be no more crying". And, as soon as the last note plays, she asks me to play the song again.
What an angel with a sweet heart. It broke her heart to learn that her mother, who's music means so much to her. . . and comforted her while she was in that orphanage in Shanghai. . . could not sing because her voice was injured. Those tears caught me by surprise, but taught me, even more, what a loving and special little girl we have the honor of calling our daughter.